When Jenna and Dan Haley, of Philadelphia, learned they were pregnant, they started dreaming of all the places and experiences they would share with their child after he was born.
But just 13-weeks into the pregnancy, their son, Shane, was diagnosed with anencephaly, a birth defect that causes babies to be born without parts of their brain or skull. The life expectancy for babies with anencaphaly is incredibly short, ranging from a few hours to a few days, so the Haleys decided to create a ‘bucket list’ of adventures to share with Shane while he was still in his mother’s womb.
The New York Daily News reports:
Despite the bleak diagnosis, the devout Catholic couple decided that getting an abortion wasn’t an option for them. Instead, the parents have tried their best to turn Shane’s devastating condition into an opportunity to celebrate his short life, embarking on a bucket list of adventures for the unborn child.
The parents have taken Shane on trips to parks, concerts and Phillies games. He was named No. 1 fan at his dad’s baseball games for the Delco League. They’ve taken a stroll down Wildwood’s boardwalk and visited an animal zoo.
Every night before going to sleep, the hopeful mom and dad say an “Angel of God” prayer. They recite the rosary at their local church every Monday night. During those times of spiritual connection, they say Shane is especially active.
“With prayers and through the grace of God all things are possible!” the couple told friends and family on their “Prayers for Shane” Facebook page.
…”It’s the hardest thing in the world but you can make it through. We’re his parents and we’re going to take care of him as long as we can.”